28. April 2016


You would like to share your data on non-HFE hemochromatosis patients and be part of our continous effort to improve clinical management of iron overload disorders?

Please contact us: Contact

You will be named as a co-author on all publications composed with your data.

Ethical approval from your local ethics committee is usually needed before starting data entry into the registry. We will aid you as much as possible to ease this task.
You can find templates for ethical approval here for download.
Please send us a scanned copy of your ethical approval.

Furthermore, a signed consortium agreement is required. Please download the form and send us a scanned copy (contact@non-hfe.com).

As soon as ethical approval is available and the consortium agreement is signed will we will provide login information for the data entry webpage.